Saturday, August 25, 2012

Coping and Support for People with Celiac Disease

It is comforting to be in the same room with people who have similar struggles.  We can learn so much from others.  My sister and I started a support group with this in mind.  We have learned about other gluten-free products from members of our support group, and we have shared recipes and ideas with each other.

I have felt that there are earthly angels who strengthen us, and heavenly angels who support us. 

I heard a quote once that “Good information leads to good inspiration.”  Education and information about our sensitivities will help us in our quest to live healthy lives.  As we learn more about celiac disease and become more comfortable with how to cope with it, we can then move on to helping others with celiac disease or with another medical condition.  

One way we can show support for others is by taking a few minutes to research about  whatever medical issue another person has.  It doesn’t take too long to do…yet it means so much to the person going through it to sense empathy and concern from another person.  I appreciate those who have learned about celiac disease and offer support.  I hope that I can do better at helping others as they go through their afflictions and strive to learn more about their medical condition.

After diagnosis, I realized that my attitude made all of the difference.  If I faced this trial with courage and strength and a positive outlook, my children did the same.  I know we can do this!  

Coping and support

By Mayo Clinic staff
Living with celiac disease can be difficult. Every day can be a challenge. Over time, however, managing your disease will become second nature. In the meantime, these suggestions may help you manage more easily:
  • Gather information about celiac disease. Talk to your doctor, look for information on the Internet, and read books and pamphlets. Ask your doctor for advice about reliable resources. Find cookbooks featuring gluten-free ingredients. Being informed about your condition can help you take better charge of it.
  • Seek out others with celiac disease. Talking to people who know what you're going through can be reassuring and informative. Your doctor may be able to refer you to a celiac disease support group in your community, or you may find one listed on the Internet or in your local paper.
  • Don't hesitate to seek guidance. If you're having difficulty coming up with suitable menus, talk to a registered dietitian. A dietitian has extensive knowledge of the nutritional aspects of food and what you can and can't eat. He or she can help you think in more creative ways about your favorite foods.

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